chronic pain

At the age of 18, I transformed from a self-proclaimed couch potato into someone who walked and eventually ran to alleviate the pain associated with my lupus. Fast forward to today, at 50, I’ve learned to navigate a life filled with persistent pain through a combination of exercise, nutrition, and lifestyle. Remarkably, I achieved all of this without relying on costly gym memberships, spa treatments, or special interventions. Over the years, I’ve experimented with various approaches and currently, I’ve embraced functional training, wholesome food, the healing power of nature, and, above all, patience.

One critical lesson I’ve learned on this wellness journey is the importance of adaptability. Being ready to pivot at any moment has been the key to my long-term success.

Recently, I consulted my MS doctor about a new injury. To my surprise, he looked at me and reassured me that he wasn’t worried because he knew I’d find a way to overcome it. I’ve been under his care for over a decade, and he’s witnessed how I manage my health with an unwavering determination and patience that has been my guiding light.

Three months ago, I transitioned from running half marathons to being confined to a boot for two weeks, immobilized. I was advised to take it easy until I was completely pain-free, but the challenge was that pain remained a constant companion.

Though I might feel youthful and robust, my joints, feet, knees, and shoulders bear the wear and tear of 50 years. They’ve held up remarkably well, but there’s undoubtedly some mileage on this body.

Many people advised me to give up running long ago, warning it would be detrimental to my joints. Others discouraged me from hiking, citing its dangers. Now, as I sit with an ice pack on my foot after a short walk, I reflect on my choices and have no regrets.

I am ecstatic that I never heeded the advice to take it easy. I’ve cherished every moment of this active life and am grateful for the risks I’ve taken, which have gifted me countless cherished memories.

For three months, I couldn’t bear weight or walk, but I never missed a workout, tracked every meal, and stayed committed to staying hydrated by drinking enough water

As I begin a course of steroids to reduce inflammation in my foot, I’m aware that I’ve invested time in healing my gait, so that when I resume walking, it won’t result in the same problem. I have a remarkable team of doctors aiding in my recovery, but I’m committed to putting in the effort on my end to complement modern medicine’s efforts.

This active aging plan will propel me forward. I refuse to become a couch potato again, even when my body feels fantastic, out of fear of injuring myself. I spent enough years on the couch, and there’s no going back.

So, what advice can I offer for managing aging and pain?

  • Listen to Your Body: Pain is your body’s way of communicating with you. Pay attention to it and explore various methods to manage it, from bodywork to gentle movement. Avoiding activity altogether is rarely the best solution; instead, modify or avoid the activities causing pain.
  • Identify the Root Cause: If there’s an underlying issue, such as a gait imbalance, address it rather than simply enduring the pain. Correcting the original problem is essential for long-term safety. 
  • Keep Moving: Movement is crucial at any age. Sitting idle for extended periods, even when recovering from an injury, is not beneficial. Find exercises that facilitate healing without exacerbating pain.
  • Simplify Wellness: Sometimes, the simplest actions yield the most significant results. Prioritize drinking enough water, mindful breathing, and planning balanced meals. These fundamental steps require minimal effort and can substantially improve your overall health.

Remember, an active and healthy life is within reach, even when navigating the challenges of aging and pain. Embrace adaptability, listen to your body, and keep moving forward. Your journey is unique, and with the right mindset, it can be both fulfilling and empowering.

“Just go breathe”, thanks Captain Obvious, do you really think some meditation will help with my stress? During 2020, I woke up every morning with a plan to focus on healthy habits, but after a couple emails or news alerts the meditation minutes became an opportunity to repeat obscenities. 

Just like many people, COVID has taken a toll on my mental health and physical health.  The past couple of months were a tipping point for my stress, and getting the advice to just meditate and breathe was like a turn on switch for my stress. I am unique, stress is subjective and what works for one person might not work for me. 

Last year I was running a 50 Mile Ultra Marathon on the 8th anniversary of MS diagnosis, and this year I was spending time in multiple doctors’ offices trying to figure out how to walk again. It has been a long slow painful road to getting my legs back this year and rediscovering a new path to a healthy lifestyle was more challenging than training for a 50 Miler.

Completing a marathon or ultra marathon is wonderful, but it’s a selfish gift to myself. Living with a chronic disease is my real greatest accomplishment, and not finding the healthiest version of me has a domino effect on everything that I love. If I can’t get out of bed, my family suffers. If a flare up is serious, I can’t work. Living with a chronic disease is basically walking around with a ticking time bomb. Honestly, everyone’s health is a ticking time bomb, but people living with chronic disease are just more aware of their delicate fuse. 

How did I fall so fast? A healthy body is not a guarantee, and finding a way to navigate is the key to staying healthy. What worked in 2013 isn’t going to work in 2020, and daily reminders that it wasn’t working were only making it worse. 

The good news is that I am feeling better, and have found a way to stay accountable to my body. My MRI is scheduled for January and I am staying on plan for the remainder of 2020.

Here’s my survival kit for the remainder of 2020 :

Acceptance

I stopped waiting to see the light at the end of the tunnel and just adjusted to living in the tunnel. This might sound negative, but for anyone who has had a difficult road gets this. Stressors are not going to magically disappear at a convenient timeline to manage my health. I need to manage my health first and adjust my eyes to the dark tunnel. I won’t be angry when I am reminded of a time that I was faster, fitter, and happier. I will celebrate the journey and embrace the change. I will be the best me, today.

Goals

The concept of setting goals did not change in 2020. When I made the decision to manage my health, lifestyle setting goals were key, but I had more bandwidth to be intense when I first started setting them. Now the goals look very different. I am not as restrictive with my plan. I celebrate a little more frequently, and have lowered the bar without compromising the results.

My Community

Meeting a friend for a cup of tea at a cafe and laughing until we were kicked out was one of those pre-COVID activities I miss the most. Things have changed, but this is an opportunity to learn and grow from the people in my life. One of my favorite “new experiences” was a Kundalini Yoga class I joined during this unprecedented time. I am excited to grow my remote world and try new things.

I have also embraced my old community. I have been quarantined with my husband at it’s like we’re 18 again when we first met. In the beginning of our relationship we played Tavli (Backgammon) for hours, like Greek sailors. Now, the board is out, and I am much better. I am excited to play together at home and eventually on the beaches of Greece. 

Planning for after COVID

The pandemic will end and I will be ready. I am researching trips and new experiences that will be around in 2021. Things will be different, I will be different, but that difference is nothing but exciting. I am not going to be sad for what I have lost in the past year, but I am going to be hopeful because of how much I learned. 

I am confident that the next time I get on an airplane I won’t complain about the dinner being served, the leg room, or the movie options. I will only be excited about the destination and the people in my life. Being different is a gift.

Ask for help 

My middle name should be TMI. I have no filter and am completely transparent. It was a trait that developed twofold after I embraced my MS diagnosis. I discovered that pretending my life was perfect lead to more stress. The people who run away from the rawest version of me are not the people I want in my life. I am not needy, but I will look for any guidance and growth from anyone. I am a student of life and that means my teachers are everyone and every where. 

Be ready to pivot

If the same actions are not working be ready to be different. I have learned that complacency is a cinder block tied to my waist when I am trying to swim. I will always be ready to pivot and grow during this crazy time.  That does not mean closing doors, but finding new ways to open them. Life is too short to be angry.

Letting go of anger

This one is tough and doesn’t happen overnight. I am not a master of this skill, but I consider it a work in progress. I aspire to be a little better each day, and if I focus on everything other than my anger this will naturally follow.

Everyone needs to find their own way to manage their inner ticking time bomb. Embrace today as a gift that can all be an opportunity to celebrate the simple things in life. Going for a run and having a stranger start a conversation because he likes my shirt is a small gift. Decorating a Christmas tree with my three adult daughters was a special moment. Taking a nap in a warm cozy bed on a rainy day is wonderful.

Things are different and that will best thing that comes out of 2020.

Reboot, reset, or jumpstart call it whatever you want it, it is a challenge to change a lifestyle.

After my MS diagnosis on 11/11/11, I have been rebooting my lifestyle on a semi-regular basis. Managing MS and lupus without utilizing any pharmaceutical options requires discipline and focus.

November 11th is a reminder of the beginning of a very long journey to good health. Last year, I celebrated the anniversary of 11/11 with a 50 mile Ultra Marathon. This year, I can’t run more than a mile pain-free. My body is betraying me and I was not in the mood to celebrate the anniversary 11/11 this year. 

In 2020, for the first time in 9 years, I cancelled a training class because of the symptoms associated with my chronic diseases. Historically, I work through the pain. I did not cancel a class when I was suffering vertigo, I warned my clients that I might tip over, but I taught the class. When a MS hug constricted my breathing, I taught spin class. 

A historic pandemic, that targets a weak immune system and small businesses, is a tsunami of stress directed at my small, unprotected island. Coaching health and wellness doesn’t protect me from life. Let’s just say I got caught in a tsunami, and it wasn’t easy to get out.

I made the decision a few months ago to begin another lifestyle reboot. I am a work in progress which means I am always working to make progress. In the beginning of my challenge, I couldn’t sleep 8 hours at night or walk more than a mile without pain. Bed rest and exercise weren’t healing me. Now I am sleeping through the night, unless a stressful situation keeps me up. I am walking, but not running.

I am joining my clients for this six week Fall Reboot.   Let’s get healthier together.

What are my goals?

  1. More Hiking

Before the pain started, hiking was an opportunity to feed my competitive spirit. I heard about the NH48, a hiking patch for hiking all 48 of the New Hampshire 4,000 Footers, and I was taking it to the next level. I was on track to bag all the summits before my 49th birthday, until pain derailed my plans. My first solo hike, after weeks of debilitating pain, was something special. Now, I schedule my week around the weather and shut off my phone for those miles on the mountain. I am finding a new level of peace in the woods.

  1. Be a good example for my clients

I have a hard time understanding coaches who don’t walk the walk as they talk the talk. If the challenge is too difficult for me to manage with my busy schedule, how can I properly coach people? I am coaching myself for the next weeks and holding myself accountable to the challenge and my clients.

  1. Be patient

A healthy lifestyle is never about a quick fix. Patience is not by any means my strongest trait, but I am excited for growth during this Fall Reboot. I am working on balancing intensity with calm.

“Adopt the pace of nature: her secret is patience.” Ralph Waldo Emerson

I will not be perfect for six weeks, but I will be different, because the same is not working.