Fitness

At the age of 18, I transformed from a self-proclaimed couch potato into someone who walked and eventually ran to alleviate the pain associated with my lupus. Fast forward to today, at 50, I’ve learned to navigate a life filled with persistent pain through a combination of exercise, nutrition, and lifestyle. Remarkably, I achieved all of this without relying on costly gym memberships, spa treatments, or special interventions. Over the years, I’ve experimented with various approaches and currently, I’ve embraced functional training, wholesome food, the healing power of nature, and, above all, patience.

One critical lesson I’ve learned on this wellness journey is the importance of adaptability. Being ready to pivot at any moment has been the key to my long-term success.

Recently, I consulted my MS doctor about a new injury. To my surprise, he looked at me and reassured me that he wasn’t worried because he knew I’d find a way to overcome it. I’ve been under his care for over a decade, and he’s witnessed how I manage my health with an unwavering determination and patience that has been my guiding light.

Three months ago, I transitioned from running half marathons to being confined to a boot for two weeks, immobilized. I was advised to take it easy until I was completely pain-free, but the challenge was that pain remained a constant companion.

Though I might feel youthful and robust, my joints, feet, knees, and shoulders bear the wear and tear of 50 years. They’ve held up remarkably well, but there’s undoubtedly some mileage on this body.

Many people advised me to give up running long ago, warning it would be detrimental to my joints. Others discouraged me from hiking, citing its dangers. Now, as I sit with an ice pack on my foot after a short walk, I reflect on my choices and have no regrets.

I am ecstatic that I never heeded the advice to take it easy. I’ve cherished every moment of this active life and am grateful for the risks I’ve taken, which have gifted me countless cherished memories.

For three months, I couldn’t bear weight or walk, but I never missed a workout, tracked every meal, and stayed committed to staying hydrated by drinking enough water

As I begin a course of steroids to reduce inflammation in my foot, I’m aware that I’ve invested time in healing my gait, so that when I resume walking, it won’t result in the same problem. I have a remarkable team of doctors aiding in my recovery, but I’m committed to putting in the effort on my end to complement modern medicine’s efforts.

This active aging plan will propel me forward. I refuse to become a couch potato again, even when my body feels fantastic, out of fear of injuring myself. I spent enough years on the couch, and there’s no going back.

So, what advice can I offer for managing aging and pain?

  • Listen to Your Body: Pain is your body’s way of communicating with you. Pay attention to it and explore various methods to manage it, from bodywork to gentle movement. Avoiding activity altogether is rarely the best solution; instead, modify or avoid the activities causing pain.
  • Identify the Root Cause: If there’s an underlying issue, such as a gait imbalance, address it rather than simply enduring the pain. Correcting the original problem is essential for long-term safety. 
  • Keep Moving: Movement is crucial at any age. Sitting idle for extended periods, even when recovering from an injury, is not beneficial. Find exercises that facilitate healing without exacerbating pain.
  • Simplify Wellness: Sometimes, the simplest actions yield the most significant results. Prioritize drinking enough water, mindful breathing, and planning balanced meals. These fundamental steps require minimal effort and can substantially improve your overall health.

Remember, an active and healthy life is within reach, even when navigating the challenges of aging and pain. Embrace adaptability, listen to your body, and keep moving forward. Your journey is unique, and with the right mindset, it can be both fulfilling and empowering.

“Just go breathe”, thanks Captain Obvious, do you really think some meditation will help with my stress? During 2020, I woke up every morning with a plan to focus on healthy habits, but after a couple emails or news alerts the meditation minutes became an opportunity to repeat obscenities. 

Just like many people, COVID has taken a toll on my mental health and physical health.  The past couple of months were a tipping point for my stress, and getting the advice to just meditate and breathe was like a turn on switch for my stress. I am unique, stress is subjective and what works for one person might not work for me. 

Last year I was running a 50 Mile Ultra Marathon on the 8th anniversary of MS diagnosis, and this year I was spending time in multiple doctors’ offices trying to figure out how to walk again. It has been a long slow painful road to getting my legs back this year and rediscovering a new path to a healthy lifestyle was more challenging than training for a 50 Miler.

Completing a marathon or ultra marathon is wonderful, but it’s a selfish gift to myself. Living with a chronic disease is my real greatest accomplishment, and not finding the healthiest version of me has a domino effect on everything that I love. If I can’t get out of bed, my family suffers. If a flare up is serious, I can’t work. Living with a chronic disease is basically walking around with a ticking time bomb. Honestly, everyone’s health is a ticking time bomb, but people living with chronic disease are just more aware of their delicate fuse. 

How did I fall so fast? A healthy body is not a guarantee, and finding a way to navigate is the key to staying healthy. What worked in 2013 isn’t going to work in 2020, and daily reminders that it wasn’t working were only making it worse. 

The good news is that I am feeling better, and have found a way to stay accountable to my body. My MRI is scheduled for January and I am staying on plan for the remainder of 2020.

Here’s my survival kit for the remainder of 2020 :

Acceptance

I stopped waiting to see the light at the end of the tunnel and just adjusted to living in the tunnel. This might sound negative, but for anyone who has had a difficult road gets this. Stressors are not going to magically disappear at a convenient timeline to manage my health. I need to manage my health first and adjust my eyes to the dark tunnel. I won’t be angry when I am reminded of a time that I was faster, fitter, and happier. I will celebrate the journey and embrace the change. I will be the best me, today.

Goals

The concept of setting goals did not change in 2020. When I made the decision to manage my health, lifestyle setting goals were key, but I had more bandwidth to be intense when I first started setting them. Now the goals look very different. I am not as restrictive with my plan. I celebrate a little more frequently, and have lowered the bar without compromising the results.

My Community

Meeting a friend for a cup of tea at a cafe and laughing until we were kicked out was one of those pre-COVID activities I miss the most. Things have changed, but this is an opportunity to learn and grow from the people in my life. One of my favorite “new experiences” was a Kundalini Yoga class I joined during this unprecedented time. I am excited to grow my remote world and try new things.

I have also embraced my old community. I have been quarantined with my husband at it’s like we’re 18 again when we first met. In the beginning of our relationship we played Tavli (Backgammon) for hours, like Greek sailors. Now, the board is out, and I am much better. I am excited to play together at home and eventually on the beaches of Greece. 

Planning for after COVID

The pandemic will end and I will be ready. I am researching trips and new experiences that will be around in 2021. Things will be different, I will be different, but that difference is nothing but exciting. I am not going to be sad for what I have lost in the past year, but I am going to be hopeful because of how much I learned. 

I am confident that the next time I get on an airplane I won’t complain about the dinner being served, the leg room, or the movie options. I will only be excited about the destination and the people in my life. Being different is a gift.

Ask for help 

My middle name should be TMI. I have no filter and am completely transparent. It was a trait that developed twofold after I embraced my MS diagnosis. I discovered that pretending my life was perfect lead to more stress. The people who run away from the rawest version of me are not the people I want in my life. I am not needy, but I will look for any guidance and growth from anyone. I am a student of life and that means my teachers are everyone and every where. 

Be ready to pivot

If the same actions are not working be ready to be different. I have learned that complacency is a cinder block tied to my waist when I am trying to swim. I will always be ready to pivot and grow during this crazy time.  That does not mean closing doors, but finding new ways to open them. Life is too short to be angry.

Letting go of anger

This one is tough and doesn’t happen overnight. I am not a master of this skill, but I consider it a work in progress. I aspire to be a little better each day, and if I focus on everything other than my anger this will naturally follow.

Everyone needs to find their own way to manage their inner ticking time bomb. Embrace today as a gift that can all be an opportunity to celebrate the simple things in life. Going for a run and having a stranger start a conversation because he likes my shirt is a small gift. Decorating a Christmas tree with my three adult daughters was a special moment. Taking a nap in a warm cozy bed on a rainy day is wonderful.

Things are different and that will best thing that comes out of 2020.

After my husband bought his first iPod, I reprimanded him for being suckered into spending money on a fleeting product. I don’t trust new things.  I hate following trends and I am anti-establishment.  I am difficult to manage and opinionated.

I have been faithfully pushing and following 6 meals a day for years. I have been taught that it is the best way to support a strong metabolism.  When I heard about intermittent fasting a few years ago, I was not interested. Anything that involves the word fasting feels dangerous unless God is involved.  My co-workers were raving about the benefits for years, but they were all guys. My daughter lost 20 pounds doing intermittent fasting but she considers ketchup a vegetable.  My other daughter started to send articles on the neurological benefits of intermittent fasting and hmm.  So when I was struggling with injuries, weakness, and brain fog I considered making a change to my nutrition.

I LOVE, LOVE, LOVE my breakfast routine. I linger around the kitchen perfecting my bacon while watching CNN and FOX News.  How could such a beautiful routine be anything but beneficial?  The only way I could have survived the past year of morning news was my regular dose of bacon.

I impulsively made a decision to start intermittent fasting over a week ago. I rushed home to finish my dinner by 7 pm. It took a lot of self-control to make changes to my nightly routine but I stopped myself from grabbing another spear of asparagus and so it began.

I am loving this new plan.  I have so much energy and more time in the day.  I believe we should all become students of our own body.  The first few days were not great but things started to change.  My family knows not to call me 15 minutes before my feeding. My girls compare me to a vampire because of my attitude toward to 8-hour feeding schedule. Only two weeks in and I am not as crazy. I am more relaxed and my pain is gone. My brain feels different.  I have my six-month neurology appointment on Thursday and I am feeling pretty good about my choices.

 

You can google “the importance of 6 meals a day” and find a lot more articles promoting the benefits.  I would encourage you to watch the youtube video at 13.58 and research the research.  No one should tell us how to think because they don’t know how we feel.

What is intermittent fasting, and is it healthy?

 

 

I will keep going on this until I don’t feel well.

In 12 weeks it will be Halloween.

mean girls

Personally I missed the Girl World generation of dressing up for Halloween. As a teenager I used Halloween as an opportunity to wear my favorite overalls and looked for a costume to indulge my love of comfortable clothing. Halloween has changed as times have changed.

When I was new to parenting, Halloween was an opportunity to showcase my parenting style, that I dubbed “lazy-creative”.  I promised  my oldest that this ensemble would help her achieve a new level of social status among the other trick-o-treaters.  I called it “package that fell off the truck”. Smart phones were not around during this time and our lives were private.  I was content to be a costume designer, make a wonderful meal, eat candy all while I wore my stretchy pants on Halloween night.  There were no smartphones to document my choices.

maddie

Now, with camera phones and social media, Halloween is a time to post great pictures. Just like any other event, people want to share  their lives with the world.  Some people go all out with the family costume or theme costume.  Some just love to get those timeless shots on Facebook or Instagram, so they can hold onto that moment in time. And now as Facebook shares those memories we are reminded of those cute costumes and adorable kids.

In 12 weeks it will be Halloween and the smart phones will be coming out.  I want to challenge you to find a new level of success in 12 weeks.  When you hand out Halloween candy this year, avoid temptation because you have never felt so good. I want you to add new clothes to your wardrobe that only emphasizes the hard work that you will be putting in over the next 12 weeks.  So join me as I prepare to dress up this Halloween as my best self.  Even if you won’t be sporting this Wonder Woman costume, you could if  you were was so inclined.

womens-wonder-lady-costume

 

Beginning a blog is a daunting prospect, especially since I don’t have faith in my writing skills.  After struggling with my words for years I was surprised to hear from my clients that I need to go public with my story.

At times, my train of thought can be described as a crop dusting of brain farts.  I was diagnosed with a learning disability at a young age and when you combine that with the distractions of motherhood, screen time and my most recent MS diagnosis, let’s just say this experiment could be a train wreck.   I will do my best to find some clarity in my calamity.

In 2000, I was living with Lupus and switched my career to fitness because I had seen the benefits it had on my health.  For 10 years I had a good run.  I completed multiple marathons, an Olympic distance triathlon, and a 200ish mile relay race. In addition, I survived three high-risk pregnancies. I was teaching spin, yoga, Pilates and training.  I was in a rush to live this life and did not want to waste a day.  

In 2010, my Lupus appeared to be in remission and I celebrated by bragging to all my fitness classes. I was a walking advertisement for the benefits of exercise.  I had grown accustomed to living in constant pain but I was thriving.  

36 Pounds ago!

36 Pounds ago!

A few months later I was out running and felt weakness in one side of my body with discomfort lasting 2 miles into the run.  At rest, I had tingling in one arm and vibrations down both of my arms.  I was exhausted all day and every day.   The final straw came when I was in Lenscrafters getting my eyes checked without any successful results.  It only seemed appropriate that such a life altering moment should happen at the Burlington Mall.

My doctor scheduled an MRI immediately and that was when they discovered the first lesion on my cervical spine.   My diagnosis was transverse myelitis and eventually MS.  

MS is not an easy diagnosis and the MRI was just the beginning of my journey with this disease. It’s a club that you would prefer not getting an invitation to, but I got the official invite after years of testing. The process for a diagnosis is  time-consuming and easily took over my life. First opinions, second opinions, and excessive tests.  Waiting rooms, needles, lab technicians, nurses and doctors became my social outlet. I slept during my scans and blamed it on my morning runs sandwiched between teaching two spin classes.  I discovered the best place to get a scan with warm blankets and good music.

I became the Roger Ebert of medical procedures. I was lucky to have a 5-star neurologist perform my first lumbar puncture. He was a true artist with a needle. He was delicate but efficient.  He played his role with the unique charm of a true veteran in his craft.  I cried and laughed before it was over and knew that he was the only neurologist I would trust with my spinal fluid.

I used to tease my husband that I thought my neurologist was just into me and that’s why he kept asking me to come back. After all, how many almost 40-year-old hotties did this guy get to see on a regular basis?  

During this time I was trying to be a good mother to three girls;  two in high school and one in middle school.  I vividly remember my OBGYN, after my third daughter was born, warning my husband about the impending hormonal craziness of the teenage years. Just like any good oracle priestess, her enigmatic prophecy became a reality at the most stressful time in our life.  I can still remember one dinner where we watched PMS get passed around the table like a bad cold.  

The peak of teenage years.

The peak of teenage years 2011

The worst of the high school drama was happening while I was losing my dad and coming to grips with MS.  My plan to move forward was unconventional and some would say crazy.   There was no manual for this life, so I had to write my own.  

January 2016 working on my balance.

Along the way I have shocked my doctors and friends.  I am strong and fit because of lifestyle choices, nutrition, fitness and NO pills. I even gave up my daily ibuprofen for pain(2400 MG a day). In addition, I have lost 36 pounds and transformed my life. Some people talk about all the amazing things they are going to do in this life and quit when things get tough… I used to be less inspired than those people. I used to be afraid of announcing a goal or aspiration.  It took me a long time to be different.   

Committing to and completing my goals is something I have learned in this crazy life.  I know if I eat a donut I will wake up in pain… so I don’t do donuts.  I know I could be in a wheelchair or using a cane in ten years if I don’t workout every day… so I get off the couch.  I force myself out of bed at 5:30 AM even when my body screams “no”.   

My next goal is to provide a weekly blog post. I will share how I handle stress and what motivates me to keep moving forwardSubscribe to my blog by adding your email address to the form on the right. You’ll be the first to hear about how I have shocked my doctors and friends!