love

I tried to be consistent and write a post yesterday, but just went to bed instead. It was a long day of living and had no desire to do anything but be in the moment.

I am having no regrets about giving up social media, but for the past few days, I have had the most vivid dreams. I am wondering if my subconscious is taunting me with the need to share in my dreams.  Bob Kraft died and Matt Damon and Ben Affleck asked me to join them for their next project.  I just had to be in the moment and take no photos. 

Back to the real flex…last night was over 8 hours of sleep and according to Professor Apple Watch I scored 99. The only thing not perfect was interruptions with a score 19/20. I am working on my desire to not impress my watch but not today.

Yesterday, my body was so quiet and I took advantage of a bluebird day with this broken body. I hiked Mt Crawford at the peak of foliage for the best day of color we have seen in years. 

I looked strong and I am seeing my muscles pop from my boring training plan.  On the way down when things were working I was grateful for my shift in workouts over the past two weeks. My feet did some amazing things and my weak left leg did the job. No need for poles doing some steep challenging terrain. The trees were quiet on this path but silently stunning.

I am noticing that the scale keeps moving up(I fought the desire to write “in the wrong direction”) and I am learning not to care about weighing 157 pounds this morning. I need to fuel this body for this life and not be worried about being skinny. I am trying to remember that bones and muscle show up on the scale.

I ate a lot of carbs yesterday and it’s working…so here is to carbs and more weight on the scale. Lets see where this journey takes me.

I am on Day Two without any social media and continue to delete every app on my phone that buzzes me. My wrist has become so quiet which might be one of the reasons I slept so well last night.  

Surprisingly, I think Reddit was the biggest offender. 

I reread my blog post yesterday and found some grammatical errors. I am curious if my writing will improve when I get more disconnected from the media.  I am seeing the beauty in my mistakes, because in this climate of auto correct and too many filters, I might have forgotten who I am. 

I woke up and confirmed with my watch that my sleep score was exceptional.  I scored a 96 according to Professor Apple Watch. I only lagged in duration with a 47/50 and interruption was a solid 19/20. My bedtime was a perfect 20/20.

I am not willing to become 100% technology free, but I am excited to see where I land on this journey. Maybe I will graduate from Apple Watch Health App  and start an Independent Study Course for this unpredictable body. But for now, I am celebrating a decent night of sleep which I did not expect at 53. Sleep has always been my biggest obstacle.

I have noticed more time in my schedule, and it has gone into cleaning my house.

So here is to another new day of choosing messy over perfection. It has translated into a more relaxed wardrobe and, so far, a little more clarity. Similar to my house, it is not perfect, but fewer dirty dishes lingered in the sink today and the bed is made.

I ran today with a lot of pain, but was not as annoyed with my broken body. I think the pain is getting a little better as I argue with my joints and brain.  It is clear my body needs a shift.  My ankle and feet have been killing me as I argue with my MS. My body wants to move one way but my body needs to move a different way if I want to keep running and hiking. The constant tug of war has led to some loud arguments.

Then I swam in the lake for maybe the last time of the season and loved it after I got over how cold it was. It helps to remind me that people pay money for ice baths, and I can have a similar experience for free,

It is nice to not be worried about photos for social media and wondering what people might think or who I might offend.  I am focused on my inner circle and being more thoughtful about those people. 

The people who I really care about and want to see every one of their photos. The people who know the good, bad and ugly about me and keep showing up. I also know the same about them. 

Today, I officially signed up for the Paris Marathon. It might have been good for social media, but I don’t care. I just want to see Paris on my feet and this broken body. I am not sure if it is my future, but I have a date with Paris in April next year. I made a $215 financial commitment to do my best to be there.  

Ever since my first diagnosis, planning for a pain free mobile future has terrified me. I am learning to face my fears and see where life takes me. It wont hurt me to train for the future even if it still terrifies me. It started by walking on a new Adventure Trail tonight and I loved every second as I mentally prepared for training while listening to the trees. I swear there are sections where they are so loud. 

Last year, on my birthday, I colored my hair for the last time.

Not because gray hair matters.
But because something stopped making sense.

I was listening closely to my body when it came to food, sleep, stress, recovery, training, gut health, and hormones. I was careful and disciplined. And yet, when it came to how I looked, I was doing the opposite. Sitting longer than recommended in a chair. Letting chemicals soak into my scalp so my white roots wouldn’t show. Ignoring the same body I claimed to respect everywhere else.

That disconnect mattered.

So for my 52nd birthday, I gave myself a gift. I stopped coloring my hair and agreed to sit in the discomfort. I promised I wouldn’t hide any part of this transition.

Not the gray roots.
Not the bloated belly that shows up sometimes.
Not the tight jeans.
Not the poor sleep that comes from under-fueling and paying for it later.

And not the truth that multiple things can exist at once.

I can look incredible in a little black dress and two days earlier feel bloated and uncomfortable. I can feel strong and grounded and still have my body respond when my period shows up and everything shifts. That isn’t failure. That’s physiology.

I wasn’t going to curate this into something cleaner or more linear than it is.

Because longevity isn’t polished.
It’s lived.

When You Stop Hiding, You Get Seen

What I didn’t fully appreciate was how visible that decision would make me.

When you live out loud and stop hiding, people notice. And with visibility comes commentary. Opinions. Projections. Sometimes thoughtful. Sometimes careless. Sometimes just a single word with no explanation.

That’s part of the deal.

Longevity training has taught me that being alive invites judgment — not because you’re doing something wrong, but because you’re doing something real.

Over the past year, I’ve heard opinions about my hair, my body, my intensity, my work. I’ve been told to transition slowly. To keep coloring. To shave my head. To cut it short because I “have the bone structure.” I’ve been told I’m too skinny. Too intense. Too much. Not credible.

I’ve even been called a scammer. In all caps. With no curiosity. No context.

And despite decades in this industry and real results, I still hear the voice in my head that says: you’re fat.

That isn’t weakness.
That’s conditioning.

The Auntie

Self-doubt didn’t start online.

It started with the first auntie who hugged me and told my mother she needed to “do something about this,” while grabbing my waist. So when doctors later told me to lose weight, it felt familiar. Praise and criticism lived in the same place in my body. Approval and shame tangled early.

Today, we understand that grabbing someone’s body and commenting on it crosses a line. And yet social media has created a loophole — a socially approved version of the unsolicited comment.

The modern auntie.

Sometimes it’s framed as concern. Sometimes as advice. Sometimes it’s just mean. Either way, it usually says more about the person offering it than the person receiving it.

Once I saw that, things got easier.

Recently, a family member expressed concern that one of my photos wasn’t “professional enough” because there was a little nipple exposure. I laughed. Genuinely. I wasn’t embarrassed. I didn’t explain or fix anything.

I didn’t give a fuck.

Another time, someone told me I shouldn’t let my hair keep growing out because it “looked so good” when it was short and gray. I understood what they meant. They liked it that way. It felt familiar.

But I didn’t do this to land on a version of myself that made other people comfortable. I did it to see what it felt like to keep going — to live inside my own choices instead of stopping where others felt reassured.

And when I catch that old voice in the mirror — you’re fat — I recognize it instantly. I know where it came from. I say, I heard you, auntie. And then I move on.

Not because I don’t care or their opinion has no value.
But because I’m good with my choices.

That’s the shift.

Not the absence of commentary, but the absence of obligation to respond to it. Recognizing that this might be their thing — not mine.

Listening Instead of Fighting

What this year taught me wasn’t how to override my body — it was how to listen to it.

Yes, there were years when my body felt like it betrayed me. Pain. Weight changes. Autoimmune diagnoses. Hormonal chaos. But part of that story was also me ignoring it. Pushing through signals. Expecting performance without listening.

So who was betraying who?

I stopped fighting.

I started paying attention — to what it needed, what it was asking for, and when it needed less pressure, not more.

That didn’t make my body easy or predictable. It made the relationship more honest. Less adversarial. Less about control and more about trust.

Longevity, for me, has been about rebuilding that relationship. Not perfection. Not blind obedience. Just mutual respect.

Being Seen Without Explaining Yourself

What makes me me are the imperfections.
The laugh lines.
The stress vein that pops out of my head.
The silver that was hidden for years.

Sometimes that means reintroducing myself to people who don’t recognize me anymore.

That’s okay.

Because what I’ve gained is more valuable than being familiar or palatable.

It’s liberating to be authentic.
To stop editing yourself for comfort.
To let your body and choices reflect a life that’s actually being lived.

I’m no longer trying to be acceptable.
I’m visible.

And once you live this way, you’re not easily forgotten.

The Long Game

Longevity training isn’t flashy.

It’s boring habits done consistently.
It’s restraint. Discernment. Boundaries.
It’s choosing a body that feels good over one that just looks acceptable.
A life that actually works over one that needs approval.

This doesn’t mean certainty.

I still doubt myself. I still question how things will land. I still feel uncomfortable sometimes.

But I don’t fight it. I don’t explain myself. I don’t correct someone else’s story.

I check in with myself.

Do I feel strong.
Do I sleep well.
Do I recognize myself in my own life.

Most days, yes.

Longevity isn’t confidence.
It’s commitment.

I have doubts.
Just no regrets.


If this resonates, I share more of this work — aging, strength, longevity, and the unpolished parts in between — on my YouTube channel. https://www.youtube.com/@ThriveBeyondDiagnosis